OPINIONS

Live and let die: A case for death with dignity

The story of Brittany Maynard (the terminally ill East Bay woman who moved to Oregon in order to end her life legally) has gained a great deal of national attention recently, reigniting the debate about a person’s right to die with help from a doctor. Known as “death with dignity” to proponents, the issue of physician-assisted suicide (PAS) comes down to the fundamental question about what people should be able to decide about their own lives.

PAS exists as part of a larger spectrum of medically assisted death, which ranges from patients refusing ventilation tubes and other life-saving treatments to euthanasia (when a physician actively kills a patient rather than letting them die). The process of dying with dignity falls closer to the former part of this spectrum, just shy of true acts of euthanasia, and consists of patients administering lethal drugs prescribed to them by a physician rather than the physician themselves administering the drugs. Only patients who have terminal illnesses, good mental health and short prognoses become eligible for PAS; other people, including those who suffer from depression, are excluded from seeking PAS to prevent its abuse as a method of care.

Only five states, like Oregon, currently allow this kind of death with dignity, either by law or by court decision. But, California and 20 other jurisdictions currently have pro-PAS bills under consideration. California’s, modeled on Oregon’s law, nonetheless faces stiff opposition from both physicians’ and religious groups. The Medical Oncology Association of Southern California (MOASC), for example, asserts that the very idea of PAS “is against everything a physician stands for,” and organizations like the California Catholic Conference argue against suicide in any form on moral grounds.

But these specific points of opposition to PAS fail to understand a critical distinction in how the right to die is legally constructed. While terminally ill people must make the decision to “die with dignity” or “die naturally” using their own moral compasses, their right to do so must not be infringed. At the end of the day, no government in the United States has the standing to deny people their right to die via PAS because of the idea of personal patient autonomy.

Approaching the intersections of bioethics and law primarily from a deontological (or absolutist) standpoint usually requires looking at such patient autonomy as sacrosanct. This follows the precedent of the Belmont Report, which established the idea of informed consent in medicine in part because of the importance it placed on autonomy. The commission that drafted that report in 1979 was created in response to the previous several decades’ bioethical travesties, the most infamous of which was the Tuskegee Syphilis Study; that federally funded study spanned four decades, during which researchers used black men as guinea pigs to study the effects of syphilis on the body, even to the point of ordering local doctors to withhold antibiotics from participants. Other context cases for the Belmont Report include that of Henrietta Lacks (the poor, black woman from whom doctors created the first immortal human cell line without her knowledge) and the Willowbrook State School (where mentally handicapped children were deliberately infected with hepatitis in order to develop a hepatitis vaccine). Such cases looked at people as (discardable) means to ends rather than as ends in and of themselves, inherently violating their autonomy.

In the case of Maynard and other terminally ill patients, the state denies them true autonomy to choose the manner of their care. Current law in most states restricts the options of patients like Maynard to two: either succumbing to their disease over the course of several months or entering palliative care with the eventual purpose of inducing a coma and “pulling the plug.”

For some people, those options are appropriate, and they should continue to exist as possible paths for terminally ill people to take in their final days. But since they both often involve an incredible amount of suffering and, for the latter, expensive medical bills, not everyone sees those two options as viable for their situation despite being forced to choose between them. Furthermore, both require physicians to sit by and not intervene to prevent the death of their patients —which, by the misguided logic used by MOASC, also goes against the dogma of physicians to prevent death or harm. At the very least, this puts the current practice of patients refusing treatment on the same ethical level as PAS.

Considering the issue of harm, however, makes the more extreme measures of euthanasia ethically unfeasible. Anything that requires the physician to actively cause the death of a patient (even with the informed consent of that patient) ceases to be an issue of personal autonomy. Instead, such cases enter the realm of the Harm to Others Principle, outlined by John Stuart Mill. This principle says that an individual’s rights can face restrictions if their exercise would cause harm to other people. Euthanasia, as such, violates the norms and ethics of good medicine by entering into this territory.

So in the interest of increasing patient autonomy, opening the doors to true forms of euthanasia goes too far. Physician-assisted suicide, therefore, exists as the only viable option. Ethically indistinguishable (at worst) from current medical practices, dying with dignity needs to become a legally acceptable option for terminally ill people.

Contact Johnathan Bowes at jbowes ‘at’ stanford.edu.

About Johnathan Bowes

Johnathan Bowes (also known as JoBo) is a senior and premed majoring in Science, Technology, and Society. Originally from Sacramento, he went to high school in Chattanooga, TN. Besides writing for The Daily, he also works for El Aguila, Stanford's only Latin@ interest and culture magazine. He's also an avid fan of black tea, Game of Thrones, and Spanish literature. Follow him on Twitter @JohnathanBowes.
  • Ariana

    Mr. Bowes,

    Your article was well written, grammatically sound, and really a nice piece of literature. I would like to make some points of clarification with your article regarding physician
    assisted suicide. First, the community of supporters of what is hypocritically titled
    as the “Death With Dignity Act,” outlines that a patient who requests this form
    of suicide may only be granted if they; 1) have a short prognosis until death,
    2) have a terminal illness, and 3) are in good mental health, with depression
    being excluded. Please explain how a person given the prognosis of death is in
    a good mental state, void of any depression. A person is informed that the life
    they knew will be ending shortly, yet this community of legislators believe
    terminally ill patients are not depressed. I disagree.

    You say that the right people have to die must not be infringed upon. I completely
    agree with this statement, however, this right currently is not being infringed
    upon. At ANY time, anyone, including a terminally ill patient, has the right to
    take his or her own life. Suicide is committed by hundreds of people each day.
    In the United States, we protect this right to life so much, that a person who
    did not pull the trigger, but was present at a murder at someone else’s hand, can
    still serve a life sentence for the death of the victim. Why are we deciding
    now that the intentional death of a person can have complicit bystanders? We
    are setting a dangerous precedent for future criminal cases.

    I also agree that experiments such as the Tuskegee Syphilis Study and Willowbrook
    State School were horrible, and am grateful everyday for the laws put in place
    to protect my community and me from this harm. However, you described that the
    researchers in these studies saw their participants as discard able. If
    physicians are required to grant a death request to their patients, how hard
    will these physicians try to save lives anymore? The original purpose of their
    profession will no longer stand, but instead, be replaced by nonchalance for
    life. Physicians will no longer fight to save the lives of patients, as they do
    now.

    You seem to concede to the concerns the opposition has by stating that, “Anything
    that requires the physician to actively cause the death of a patient ceases to
    be an issue of personal autonomy.” This statement now conflicts with the
    premise of your article, on the basis of protecting personal autonomy, which is
    no longer valid, as the physician is now actively enabling the death of a
    patient. The physician, knowing how, and for what, the prescription will be
    used, must sit back and accept that their patient may commit suicide with their
    assistance. This idea goes against any law protecting a physician’s right to refuse
    prescribing harmful medication, and ultimately, it goes against their entire
    Hippocratic Oath of “do no harm.”

    California Penal Code 401 states that it is illegal to aid and abet someone who is
    attempting suicide, ala Dr. Kevorkian, but attempting suicide on your own is
    not a crime. The aid of the physician is illegal. Under the Physician Assisted
    Suicide plan, physicians will be allowed to aid in the death of their patients,
    making it a reasonable assumption that any currently incarcerated nurse,
    hospice, palliative care worker, social worker or physician who may have aided
    in the death of their patient should be released on the grounds that they were
    helping their patient die with “dignity.” Also, the myopic understanding of
    terminal illness you profess has a recorded 1 in 60,000-80,000 remission rate,
    spontaneously. You are ignoring the fact that at some point, you will be
    authorizing the death of someone who may have recovered spontaneously.

    You accuse the Medical Oncology Association of Southern California as having
    “misguided logic.” Speaking of myopic understanding, and arrogance, what makes you
    or any one endorsing the passage of this act, knowledgeable enough to dictate
    to a profession how they should practice their trade? Your article was well
    written, grammatically sound, and really a nice piece of prose. Would you take
    so kindly if the government, and emotionally distraught individuals, came in
    and told you that you can no longer write in the style of your comfort? Nor apply
    the basic tenets of what you were taught in journalism school? That is the mob
    action you are endorsing by dictating to the profession of medicine to no
    longer practice what they were taught in medical school. To no longer practice
    their ethical beliefs. There is a reason why the American Medical Association,
    and very strongly, the American Society of Anesthesiologists is vehemently
    opposed to their involvement in the administration of lethal injection to death
    row inmates. Physician Assisted Suicide is no different. There is no dignity in
    suicide.

    I do not have an issue with individuals committing suicide. They may do so by
    their own hand, with their own noose, or their own gun. If the legislators, and
    the distraught, are so desperate for the imprimatur of the government to authorize
    their own demise, why not have the legislator be responsible for the method of
    death, and a pharmacist mix up a batch? Why not allow the Governor to sign off
    on the death of these patients, just as he does death row inmates?
    So Mr. Bowes, I will leave you with this. A part of this act requires a relative
    to witness the signature of the patient requesting death. Why not allow the
    relative who witnessed the request to be the one to hold the gun to their
    relative’s head and bring the death the patient so desperately wants, too
    cruel? Then why are you, and legislators, holding that same gun against the
    head of the doctors, forcing them to go against their basic tenet of SAVING
    lives.

    Thank you for
    your consideration.

    Sincerely,

    Ariana Lamb