2020
Family Caregiving Innovations; A Roadmap to Emotional Health for CSHCN and Families; New Director for Department of Health Care Services (2/6/20)
New Tool to Assess Family Engagement; CCS Advisory Group Updates; Grants Letters of Inquiry Due (1/23/20)
Letters of Inquiry Due for Grants; 2019 Publications Recap; CCS Advisory Group to Meet (1/9/20)
2019
New Family Engagement Policy; Caregiver Challenges; CSHCN and Adverse Childhood Experiences (12/19/19)
New Foundation Grants; A Creative Approach to System Improvement; Self-Care for Caregivers (12/5/19)
Building a Strong Family-Clinical Partnership; Telehealth and Children; Long-Term Care Solutions (11/14/19)
Complexities of Home Health Care; Family Leadership Training; Letters of Inquiry Due for Foundation Grants (10/31/19)
Team-Based Care Coordination; CCS Transition Group to Meet; Integrating Complex Care Services (10/17/19)
Improving Home Health Care; Getting the Most Out of Medicaid; Encouraging Family Leadership (10/3/19)
Family Compensation for Research; Supporting the CSHCN Workforce; CCS Advisory Group to Meet (9/19/19)
How Medicaid Can Improve Access to Care; States Vary in Coverage under Medicaid Waivers; CCS Whole Child Evaluation Plan (9/5/19)
Creating Care Coordination Standards; Family Caregiving Council Forming; Complex Care Conference (8/22/19)
Transition Toolkit; AMCHP Highlights Special Needs; Whole Child Case Management (8/8/19)
National CSHCN Research Network; Care Coordination Curriculum Revised; CCS Advisory Group Updates (7/25/19)
New Foundation Grants; Rethinking Family Caregiving; CCS Advisory Group to Meet (7/11/19)
Home Health Care Shortage; Dr. Ed Schor Departing; Parsing “Family Burden” and Other Terms (6/20/19)
Funding Opportunities; Regional Center Service Inequities Continue; Mutual Learning from Pedes, Adult Medicine (6/6/19)
Reflecting on Medical Complexity; Senate Subcommittee Explores Whole Child Model; Sensory Sensitivity (5/23/19)
Mental Health; Emergency Planning Tips; Families Are Key to Home Health Care (5/9/19)
New Foundation Grants; Mental Health and CSHCN; Telehealth Progress (4/25/19)
Family Leadership Training Success; Joining Forces to Address System Improvement; CCS Whole Child Updates (4/11/19)
Nurses Improving Hospital Discharge; CCS Advisory Group to Meet; How Families Drive Better Outcomes (3/28/19)
Transforming Care for Children with Complexity; An Overview of CSHCN Issues; Supporting Family Caregivers (3/14/19)
Identifying and Serving Children with Medical Complexity; Foundation Funding Opportunity; CCS Workgroups Meet (2/28/19)
True Costs of Care Coordination; Chronic Care and Pediatrics; Special Ed and Pediatricians (2/14/19)
Technology Tackles Care Coordination; Family Voices Summit Coming Up; Redefining “Chronic Care” (1/31/19)
Recognizing Psychosocial Factors that May Affect CSHCN; California Children’s Services to Address Transition to Adult Care; Funding Opportunity (1/17/19)
Assessing Family Engagement; 2018 Highlights; CCS Advisory Group to Meet (1/3/19)
2018
10 Essentials for Quality Care Coordination; CCS Transition Approaching; Power of Family Partnerships (12/13/18)
A Human-Centered Design Approach to Care Coordination; Tips for Keeping Families Engaged in Advisory Groups; Long-Term Services in Medicaid Managed Care (11/29/18)
New Foundation Grants; Tool Identifies Key Quality Measures for CSHCN; Clinical Guidance on Transition to Adult Care (11/15/18)
Shared Plans of Care Enhance Care Coordination; Funding Opportunities; How Changing Payment Models Affect Health Services (11/1/18)
Families Helping Families; Improving CCS Services; Focusing on Medical Complexity (10/18/18)
Toolkit for Using CSHCN Quality Standards; Helpline for CCS Families in Managed Care Transition; Helping Families Understand Complex Medical Information (9/20/18)
Protecting the Rights of Children with Medical Complexity; Improving California Children’s Services; A Mother’s Advocacy Journey (9/6/18)
Measuring Population Health for Children with Medical Complexity; Financial Hardship for CSHCN Families; Team Care for Pediatrics (8/23/18)
Supporting Self-Management; Two CCS-Related Meetings; Films About Families (8/9/18)
Federal Funds to Boost Medical Home, Transition, Financing of Care; A Care Coordination Conversation; DME Delays in the News (7/26/18)
Foundation Awards Grants; CCS Advisory Group Meets; Care Coordination Webinar; Foundation Names CEO (7/12/18)
A Mental Health Journey; CCS Advisory Group to Meet; Improving Medical Homes for CSHCN (6/21/18)
How Well Does Each State Serve CSHCN?; CCS and Transition to Adult Care; Lawsuit Over In-Home Nursing (6/7/18)
Family Leadership in Policy; How Pediatricians View Caring for CSHCN; CCS Webinar Slides (5/24/18)
Durable Medical Equipment Delays; CCS Transition Webinar; Hospital Readmission and Adolescents (5/10/18)
Care Coordination Lessons from Medicare; States Use Managed Care to Improve CSHCN Service Quality; CCS Sets Whole-Child Model Webinar (4/26/18)
A Tool to Assess Family Engagement; CCS Transition; Screening for Social Determinants (4/12/18)
Foundation Grants; the Emergence of Medical Complexity; CCS Advisory Group to Meet; Telehealth’s Potential (3/29/18)
CCS Updates; ‘Complexity Tiering’ and CSHCN; Funding Opportunity (3/15/18)
Highlighting Children with Medical Complexity; CCS Updates; Take the Newsletter Survey (3/1/18)
“Risk Tiering” for CSHCN; Transition Stories Sought; New Focus on Family Engagement (2/15/18)
Improving Care through Cross-Sector Collaboration; Advice on CCS Changes; Local Grants Target Care Coordination (2/1/18)
CCS Redesign Updates; Title V and CSHCN; Family Caregivers Act Moves Forward (1/18/18)
CCS Advisory Group Meets Jan. 10; The Year in Review; Grant to Bolster Telemedicine (1/4/18)
2017
CCS Advisory Group to Meet; Mental Health Services and CSHCN; Developmental Disability Diagnoses Increasing (12/14/17)
Valuing Family Engagement; Spotlight on Quality Improvement (11/30/17)
New Foundation Grants; Microsoft CEO Learns Empathy; Stanford’s Complex Care Hub (11/16/17)
How State Policies Can Enhance CSHCN Care; Quality Standards Are Focus of Website, Webinars; Family Engagement Resource (11/02/17)
Managing Medical Complexity; Photo Essay - The Catastrophic Diagnosis; Law Addresses Regional Center Inequities (10/19/17)
Update on CCS Transition; Improving Managed Care for CSHCN; Easing Transition to Adult Care (10/05/17)
CCS Advisory Group to Meet; Designing a Complex Care System; Devastating Health Care Bill Looms (9/21/17)
Access to Mental Health Care; Primary/Specialist Collaboration; Respite Care Hours Restored (9/7/17)
Lawsuit Challenges Medi-Cal Transfers to Managed Care; Hospital ‘Tablets for Everyone’ Project Keeps Families Informed; Children’s Health Insurance Funding Uncertain (8/17/17)
New Grant Targets Complex Care Clinics; Improving Primary Care/Specialist Relations; Palliative Care Waiver Renewal (8/3/17)
Family Leadership Training; Urgent Call-In Day Tomorrow on Health Care Bill; Update on CCS Transition (7/20/17)
Health Bill Back in Play Next Week; A Transportation Success Story; CCS Advisory Group to Meet (7/6/17)
Immediate Action Urged on Health Care Bill; CSHCN System Quality Standards Revised; CCS Advisory Group to Meet (6/22/17)
New Foundation Grants; Empowering Families to Share Decisions; Infographic Highlights Medicaid Role for CSHCN (6/8/17)
New Tool to Assess Care Integration; Regional Center Disparities; Health Care Financing Strategies for CSHCN (5/25/17)
Care Coordination Innovations; Supporting Transition to Adult Care; A Family’s Dream (5/11/17)
Mental Health Awareness; CCS Redesign Update; Title V Programs Survey (4/27/17)
National Standards for CSHCN Care; CCS Advisory Group Meets; Parents Assess Children’s Hospitals (4/13/17)
How Pediatricians View Caring for CSHCN; CCS Advisory Group to Meet; Supreme Court Rules on Special Education (3/30/17)
Family Engagement Is Topic for Senate Select Committee; Medicaid Action Urged; Regional Center Purchase of Services Disparities (3/16/17)
New Foundation Grants; How Medicaid Block Grants, Caps Could Affect CSHCN; CCS Technical Workgoup Meets (3/2/17)
Innovations in Care Coordination; CCS Survey on Access to Durable Medical Equipment; Medi-Cal Managed Care Adequacy Standards (2/16/17)
Measuring Care Integration; “Grandmother” of Disability Rights Movement; CCS Meeting Highlights (2/2/17)
CCS Redesign Delayed; Care Planning Q&A; New CSHCN Data (1/19/17)
CCS Redesign Update; Technical Assistance for System Improvement; Financial Burden on Families (1/5/17)
2016
New Tool for Shared Care Planning; Tell Your Family Story; Opinions on Future of Health Care (12/15/16)
Children with Medical Complexity; CCS Whole-Child Appeals Process; Apples and Oranges in Health Care Systems (12/1/16)
CCS Advisory Group to Set Meeting Agenda; Grant Opportunity – Children with Medical Complexity; Challenges of Managed Care (11/17/16)
New Foundation Grants; Webinar on Care Plans; Family Engagement Toolkit (11/3/16)
Care Planning Webinar; Evaluating CCS Pilots; Training Parents to Advocate (10/20/16)
Tomorrow – CCS Advisory Group to Meet; CCS Redesign Bill Signed; Books of Interest (10/4/16)
New Grant Supports Family Advocacy; Explaining New Managed Care Regulations; Evaluating CCS Models of Care (9/22/16)
Governor Weighs CCS Redesign Bill; New Sitcom Highlights Special Needs; Managing Chronic Illness at Home (9/8/16)
Assembly Vote Pending on CCS Redesign; Care Coordination Research; South Asian Service Center Faces Eviction (8/18/16)
Hearing Set on CCS Legislation; Letters Due for Grant Applications; New Look at Family Engagement (8/4/16)
Webinar: Continuity of Care as CCS Changes; Latino Families to Meet; New Foundation Grants (7/21/16)
Care Coordination and Kids with ‘Social Complexity’ A Chance to Comment on CCS Redesign; The Future of Medi-Cal at Half-Century Mark (7/7/16)
State Releases CCS Redesign Documents, Responds to Senate Bill 586; Five Families Make a Difference; Grant Opportunities (6/23/16)
Assembly to Consider CCS Redesign Bill; Roadblocks for Spanish Speakers; School Nurses and Care Coordination (6/9/16)
Tomorrow: Comment on CCS Advisory Group Agenda; Family Participation in Hospital Discharge Planning; Changes to Medicaid Managed Care (5/25/16)
Request for Proposals; CCS Redesign Legislation Amended; A Regional Center Primer (5/12/16)
CCS Redesign Recommendations; Billing for Care Management; 10 Films that Highlight Special Needs (4/28/16)
New Foundation Grants; Advocates Comment on CCS Redesign Proposal (4/14/16)
CCS Advisory Group to Meet; Complex Care Clinics; Taking Action on Care Coordination (3/31/16)
Legislature May Slow CCS Redesign; Telehealth Grants Available; Senate Select Committee to Meet (3/17/16)
Report on CSHCN under Managed Care; New Senate Committee on Special Needs; Funding Boost for Developmental Disabilities (3/3/16)
'Tax Swap' May Boost Developmental Services; Emergency Planning for CSHCN; Fact Sheet on CCS Redesign Budget Language (2/18/16)
Setting the Agenda for CCS Advisory Group; Family Voices Summit; Testimony from Senate Hearing on CCS Future (2/4/16)
Progress in Local Care Coordination; CCS Working Groups to Meet; Apply for Grants to Address Social Determinants of Health (1/21/16)
Six New Grants; Comparing Current CCS to the Proposed Model; 2015 Publication Highlights (1/7/16)
2015
Caring for Kids with Medical Complexity; CCS Stakeholders Meet Jan. 6; Grants Available (12/17/15)
CCS Updates; Medical Homes and Hospital Readmissions; Two Live Webcasts on Children with Complex Conditions (12/3/15)
Paying for Care Coordination; Hearing on CCS Future; Designing Systems that Work (11/12/15)
History of Child Disability Laws; Care Coordination at AAP Conference; Affordable Care Act Updates (10/29/15)
CCS Carve-Out Extension Bill Signed; Advisory Group Meeting Wednesday; Children Using Long-Term Care (10/15/15)
CCS Redesign Meetings; Mom Advocates for Larger Changing Tables; New Foundation Website (9/30/15)
CCS Redesign Bill on Governor’s Desk; Building Effective Family Advisory Councils (9/17/15)
CCS Redesign: State Proposes Changes to Model; Carve-Out Extension Bill Moves Ahead; Preserving the Specialty Care Network (9/3/15)
CCS Stakeholders Pursue Redesign Delay; Legislature Considers Medi-Cal Rates (8/20/15)
Support Sought for CCS Extension Bill; Telehealth Holds Promise; New Model for Transition to Adulthood (8/6/15)
Stakeholders Question CCS Redesign Plan; Opportunity for Training Family Advocates; Access Hurdles Highlighted (7/23/15)
TOMORROW: CCS Redesign Stakeholder Advisory Board Meeting (7/16/15)
July 17: CCS Stakeholder Advisory Board to Discuss Whole Child Model; Meet a Parent Turned Advocate (7/9/15)
Stakeholders Respond to CCS Redesign Proposal; Training Families to Be Policy Advocates (6/25/15)
MONDAY: Meeting on State's Plan for CCS; Comments on Plan Due July 3 (6/18/15)
New Foundation Grants; CCS Stakeholders to Review Proposed Models; Parents Tell Their Stories (6/11/15)
Tomorrow: CCS Redesign Webinar; A Novel Approach to Transition; Rally to Support Medi-Cal Funding (5/28/15)
New Principles Proposed for CCS Redesign; How California Funds Child Health; Paying for Transition Services; State Budget Revision (5/14/15)
CCS Redesign Workgroups Meet; Self-Management Supports for Families; National Standards Get Congressional Visibility (4/30/15)
CCS Title V Needs Assessment; Medi-Cal Children's Advisory Panel; Transition Ideas (4/16/15)
New Foundation Grants; CCS Outcome Measures; Improving Hospital Discharge (4/2/15)
Tomorrow: CCS Stakeholders to Discuss Potential Models; Special Education and Common Core; Life Course Health for CSHCN (3/19/15)
CCS Redesign Workgroups; The Real Care Coordinators; Progress on National Standards for System of Care (3/5/15)
CCS Needs Assessment; A Parent-Advocate's Dream; Care Coordination Progress (2/19/15)
A Range of Ideas for CCS Redesign; Websites Focus on Transition to Adult Care; Medi-Cal Concerns (2/5/15)
CCS Advisory Board Meets Tomorrow; Supporting Self-Management; School Nursing for CSHCN (1/22/15)
CCS Redesign Advisory Board Members; Grants for Care Coordination; Tax-Free Savings Accounts (1/8/15)
2014
Upcoming Meetings on CCS Redesign, Autism, Medi-Cal; Advocacy Tools for CHIP Renewal (12/18/14)
CCS Redesign Advisory Board Meets; Foundation Grants Awarded; Progress on Tax-Free Savings Accounts (12/4/14)
CCS Stakeholder Meetings; CCS Provider Survey; Open Enrollment Webinars (11/13/14)
CCS Redesign Stakeholder Advisory Board Chosen, First Meeting Set; Tools for Care Coordination; Latino Child Health; BHT Clarification (10/30/14)
Examining Family-Centered Care; CCS Redesign; Improving Local Care Coordination; ABA Meeting Today (10/16/14)
How the State's CCS Stakeholder Process Will Work; A Look at Complex Care Clinics; More on ABA Coverage; Profile: Ann Kuhns (10/2/14)
Comments Sought on Future of CCS; Governor Okays Children’s Medi-Cal Panel; CCS Stakeholders Developing Plan (9/18/14)
Improving Hospital Discharge Planning; Payment for ABA Therapy; Governor to Decide on Medi-Cal Advisory Panel; How Grants Support Paying for Care Coordination (9/4/14)
State Announces CCS Stakeholder Plan; Medicare to Pay for Care Coordination; Advice on Individual Education Plans; Applied Behavioral Analysis Meeting Set (8/21/14)
Medi-Cal to Cover Autism Therapy; CCS Stakeholder Meetings Continue; National System Standards Move Ahead (8/7/14)
Webinar: The 1115 Waiver, Including Future of CCS; Palliative Care Program; Workforce Law Supports Youth with Disabilities (7/24/14)
CCS Stakeholders to Meet; Webinar for Prospective Grantees; Empowering Families as Advocates (7/10/14)
Request for Proposals; Care Coordination Approaches in Six States; Family Voices Launches ‘One-in-Five’ Campaign (6/26/14)
Grants Awarded; Family Participation in Policymaking; CCS Update; Demo Project on Early Screening (6/12/14)
Improving Transition to Adult Care; Group Exploring CCS Regional Model; Newsletter Survey Results Are In (5/29/14)
Stakeholder Views on Future of CCS; ABA Therapy and Medi-Cal; Profile: Meg Molloy, RN (5/15/14)
CRISS Conference Features Panel on CCS; Developing an Effective Shared Plan of Care; Tim Curley of Children’s Hospital Central California (5/1/14)
New Grants; Legislative Forum on Developmental Disabilities Service System; Parent Liaison Kausha King (4/17/14)
School Nurses and CSHCN; Arthur Manalac on ‘System Thinking’; Win a Gift Card (4/3/14)
New National Consensus on Standards for Systems of Care for CSHCN; Q&A with Karen Fessel; Proposed Legislation on Developmental Disabilities (3/20/14)
Dr. Jim Marcin on Telemedicine; Future of CCS; Health Homes Potential; Managed Care in Three States (3/6/14)
Will ACA Change CA Child Health Programs?; Meet Mark Edelstein; Members Suggest Model Care Coordination Programs (2/20/14)
New Data on CSHCN; Profile: MCHB's Bonnie Strickland; Proposed Health Care Portal for CCS Providers (2/6/14)
Progress on care coordination; grant opportunities; member comments on proposed Title V changes, and more: Newsletter from the California Advocacy Network for Children with Special Health Care Needs (1/23/14)
Meet Sherry Torok; Legislative Hearings next week; Affordable Care Act Fact Sheet; and more: Newsletter from the California Advocacy Network for Children with Special Health Care Needs (1/9/14)
2013
Insurance Enrollment Deadline; CSHCN in the News: Newsletter from the California Advocacy Network for Children with Special Health Care Needs (12/19/13)
New Grants Announced; Guest Opinion; Grant Opportunity and More: Newsletter from the California Advocacy Network for Children with Special Health Care Needs (12/5/13)
Network Member Dr. Mary Doyle; State Task Force Looks at Special Ed; Necessary Therapies Mandated; and more: Newsletter from the California Advocacy Network for Children with Special Health Care Needs (11/21/13)
Meet Health Net’s Janice Milligan; DHCS Sets Webinar on Healthy Families Transition; Teens and Their Meds; and more: Newsletter from the California Advocacy Network for Children with Special Health Care Needs (11/7/13)
Find Grant Opportunities, Meet Network Member Kris Calvin, and more: Newsletter from the California Advocacy Network for Children with Special Health Care Needs (10/24/13)
Network Member Rebecca Hernandez; Governor Signs Key Bills, and more: Newsletter from the California Advocacy Network for Children with Special Health Care Needs (10/10/13)
Care Coordination Survey, New Rights for In-Home Caregivers and More: Newsletter from the California Advocacy Network for Children with Special Health Care Needs (9/26/13)
Legislation on Health Homes Passes; Meet Network Member Dr. Anand Chabra; New CSHCN Blog, and more: Newsletter from the California Advocacy Network for Children with Special Health Care Needs (9/12/13)
Transition to Adult Care; Funding Care Coordination; Covering Speech Therapy and more: Newsletter from the California Advocacy Network for Children with Special Health Care Needs (8/29/13)
Medi-Cal 10% Cuts Scheduled; Palliative Care; Medications in Schools and more: Newsletter from the California Advocacy Network for Children with Special Health Care Needs (8/15/13)
Webinars on Healthy Families, Care Transition for Young Adults, and the ACA; Meet Network Member Karen Wayman, and more: Newsletter from the California Advocacy Network for Children with Special Health Care Needs (8/1/13)
Helping Rural Kids with Special Health Care Needs, Free Adaptive Phones and More: Newsletter from the California Advocacy Network for Children with Special Health Care Needs (7/18/13)
New Child Health Grant, Special Education Lawsuit, Meet a Network Member and More: Newsletter from the California Advocacy Network for Children with Special Health Care Needs (7/8/13)
Career Development Scholarships and Choosing Insurance on the New Exchange: Newsletter from the California Advocacy Network for Children with Special Health Care Needs (6/20/13)
How CSHCN May Fare in ACA Exchanges, Improving Care Coordination, and More: Newsletter from the California Advocacy Network for Children with Special Health Care Needs (6/6/13)
The “Hab-Rehab” Conundrum, New Grant Opportunities, and Network Member Profile: Newsletter from the California Advocacy Network for Children with Special Health Care Needs (5/23/13)
Mental Health, Family-Centered Care, Child Health Research: Newsletter from the California Advocacy Network for Children with Special Health Care Needs (5/9/13)
Subspecialty care webinar today, grant opportunity, Sacramento briefing: News from the California Advocacy Network for Children with Special Health Care Needs (4/25/13)
Access to Pediatric Specialists, Legislative Briefing, Medi-Cal Transition – Read the newsletter of the California Advocacy Network for Children with Special Health Care Needs (4/11/13)
Upcoming: Legislative briefing on CA children with special health care needs - News from the California Advocacy Network for Children with Special Health Care Needs (3/28/13)
New grants, learning collaborative, CSHCN in the news – Read the e-newsletter of the California Advocacy Network for Children with Special Health Care Needs (3/14/13)
Policy updates, sequestration, CSHCN in the news – Read the e-newsletter of the California Advocacy Network for Children with Special Health Care Needs (2/28/13)
Policy updates, grant opportunity, CSHCN in the news – Read the e-newsletter of the California Advocacy Network for Children with Special Health Care Needs (2/14/13)
E-newsletter of the California Advocacy Network for Children with Special Health Care Needs (1/31/13)
Debut Edition: E-newsletter of the California Advocacy Network for Children with Special Health Care Needs (1/17/13)
2012
Network Survey: Care Coordination for Children with Special Health Care Needs (12/13/12)
Grant Funding Available for Care Coordination (12/3/12)
New Grants Focus on Improving Care Coordination (11/8/12)
Program for Children with Special Health Care Needs Featured in Grantmakers in Health Bulletin (10/23/12)
