In December 2015 the Foundation sponsored a national symposium, Building Systems that Work for Children with Complex Health Care Needs, at which multiple experts discussed a breadth of issues related to children with medical complexity. As a follow-up the Foundation funded a supplement to Pediatrics in 2018 that highlighted some of the presentations from the symposium. This was followed by a series of discussions with the authors of the supplement articles and other experts to explore ways to improve the systems of care for children with chronic and complex health care needs.
Access the articles, recordings of the conversations and slides, and responses to audience questions below.
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April 23, 2018The Emergence of Pediatric Complex Care
Increased attention to children with medical complexity has occurred because these children are growing in number, consume a disproportionate share of health-system costs, and require policy and programmatic interventions that differ in many ways from the broader group of children with special...
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June 6, 2018Meaningful Family Engagement, from Clinical Care to Health Policy
Engaging with families is vital to transforming the health care system and positively impacting the life course of vulnerable populations. Families have extensive experience in partnering with professionals to improve systems of care, are organized and connected across the country, and stand...
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June 28, 2018Models of Care Delivery for Children with Medical Complexity
Improvements in care delivery for children with medical complexity are becoming a major focus of national and local health care and policy initiatives. A number of new models have been developed, with promising examples of enhanced care coordination and family engagement.
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July 26, 2018Care Coordination for Children with Medical Complexity: Whose Care Is It, Anyway?
Care coordination is an important approach to addressing the fragmented care that children with medical complexity often encounter. What are optimal care coordination services? How does care coordination intersect with care integration and case management? Learn best practices and how to...
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August 23, 2018Supporting Self-Management in Children and Adolescents with Complex Chronic Conditions
While self-management support has been a component of adult chronic care for decades, it is just emerging as a critical need for children, especially those with complex conditions. Self-management is a shared undertaking between the child, their parents and care providers, and must take into...
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September 24, 2018Protecting Rights of Children with Medical Complexity in an Era of Spending Reduction
Sufficient access to services for children with medical complexity varies considerably by state, geographic region, and payer. Families, advocates, and health care professionals need to understand children’s rights. Policymakers and payers must help support reliable and appropriate coverage and...
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November 5, 2018Ethical Considerations for a Fair and Effective Health Care System
What ethical considerations should guide the design and evaluation of systems of care for children with medical complexity? There are inevitable tradeoffs that any complex health care system must confront when attempting to achieve multiple worthy goals, from benefitting individual patients and...
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November 14, 2018The Effect of Payment Models in Children’s Health Care
Proposed changes in health care payment, from fee-for-service to alternative, risk-sharing payment models, can have a substantial impact on health services for children, especially those with complex care needs. In addition, tying payment to value can increase use of ambulatory and preventive...