The Stanford Neuromuscular Disorders Program News & Events

Yuen So, Professor of Neurology, was interviewed in this segment about amotrophic lateral sclerosis (ALS).

June

6/3: 8:30AM-5:00PM Cure Duchenne Cares Family Summit Palo Alto, Sheraton Palo Alto, CA
More information

JULY

7/8: 11:00AM-2:00PM CMT Support Group, Speaker: T.B.D., Location: Stanford Neuroscience Health Center, Wellness Room, 1^st Floor, Palo Alto, CA

7/11: 6:00 PM – 7:30 PM, Myasthenia Gravis Support Group, Location: Stanford Neuroscience Health Center, Wellness Room, 1^st Floor, Palo Alto, CA

SEPTEMBER

9/3: Annual Walk to Run 4 CMT, Time & Location: T.B.D.

9/5 – 9/9: International Myotonic Dystrophy Meeting (IDMC-11), Embarcadero Hyatt, San Francisco, CA   

OCTOBER

10/10: 6:00 PM – 7:30 PM, Myasthenia Gravis Support Group, Location: Stanford Neuroscience Health Center, Wellness Room, 1^st Floor, Palo Alto, CA

NOVEMBER

11/11: 11:00AM-2:00PM, CMT Support Group, T.B.D., Location: Stanford Neuroscience Health Center, Wellness Room, 1^st Floor, Palo Alto, CA

CMT Support Group Dates for 2017

When: 11 am – 1:00 pm
Where: Stanford Neuroscience Building, Wellness Room, 1st Floor, 213 Quarry, Palo Alto

January 14: Guest Speaker: Martin Simenc, founder of Home Safety Products, will speak on making home modifications. For more info about Home Safety Products, visit http:// www.homesafety.net/

March 11: Speaker: Arnie Davis of Davis Foot Comfort Center in San Francisco will present on finding the right shoes, and his work with custom adjustments for shoes to address our funky feet.

May 13: Christy Vitiello, an acupuncturist, will speak on how acupuncture can improve some CMT symptoms. Her practice is in San Francisco. Christy will share with us the benefits of acupuncture and some recommendations for finding the right acupuncturist for you. http:// www.cv-acupuncture.com/

July 8: t.b.d. 

September 3: Annual Walk to Run 4 CMT.  

November 11: t.b.d.

Myasthenia Gravis Support Group Dates for 2017

When: 6pm-7:30 pm
Where: Stanford Neuroscience Building, Wellness Room, 1st Floor, 213 Quarry, Palo Alto

February, 21: Guest Speaker: Sarah Strandberg, Speech & Language Pathologist, Stanford

April 11: no speakers

July 11: speaker tbd

October 10: speaker tbd

Neuromuscular Multidisciplinary Clinic responds to Ice Bucket Challenge

California Pacific Medical Center’s Forbes Norris MDA ALS Research Center challenged Stanford’s Neuromuscular Multidisciplinary Clinic to the Ice Bucket Challenge. Yesterday more than 30 people from the Neurosciences Department, the Rehabilitation Department, the construction team for the new Hoover Two building project, the Integrative Medicine team and the business development team joined the Neuromuscular Team to respond to the challenge. Neuromuscular Clinic Director, John W. Day, MD, PhD, said a few words about the need for ALS research funding and challenged several other teams to do the Ice Bucket Challenge. Stanford’s Neuromuscular Multidisciplinary clinic cares for ALS patients and their families and is involved in ALS research. For more information about ALS and the Ice Bucket Challenge visit icebucketchallenge.org.